I've wanted to talk about my experience with SIBO (Small Intestinal Bacterial Overgrowth) on this blog for a long time but every time I start I find it just takes way too long to explain and no one wants to read all about my medical tests and every misdiagnosis so in short I will say I nearly died from SIBO. Some people say that dying from SIBO is not possible but they are wrong. You can die if you don't get the proper medical help and that is what I faced for months. I saw 14 medical doctors, 2 Psychiatrists, a Psychologist, 2 surgeons, 3 naturopaths, 2 functional medical doctors and even made a visit to the Mayo Clinic before I was on my way to recovery - and no, Mayo didn't help me recover. The only other person I've come in contact with that had SIBO has awful as I did was a woman who was misdiagnosed with MS (Multiple Sclerosis) and she was confined to a wheelchair for months. Once she received a proper diagnosis and was treated for SIBO she was back hiking mountains again. So yes, you can be severely ill from SIBO and you can die if no one will help you. I nearly starved to death, lost 25 lbs in two months, could not get out of bed for more than few minutes each day and no one would help me or knew how to help me until I found the RIGHT Naturopathic doctor.
Today I am so much better. I'd say I am 100% better but I have SIBO again. I had kidney surgery a year ago (an issue caused by SIBO) and about 6 months later was diagnosed with SIBO again. Not sure if the surgery was the cause, the antibiotics given during surgery, or the probiotics I was put on following my first successful treatment of SIBO. It's hard to say, but I back on treatment again and doing really well. One major change I made this time around is sticking to the SCD diet. I stuck to it 80% of the time before but I cheated by eating oatmeal to maintain my weight and I ate buckwheat flour and maple syrup not knowing at the time they were not SCD legal. Now I know what is and isn't legal so I stick to the SCD diet 100% of the time and it makes a huge difference in how my gut feels and the response I am having to the SIBO treatment.
One of the biggest challenges for me when I was diagnosed with SIBO was finding the right foods to eat so I am going to post on my blog recipes I create or recipes I find that are SCD legal in hopes of helping others with SIBO. You will be able to find all SIBO related posts under the SIBO tab across the top of this blog.